On July 26, 2013, I woke up around 6:30am. I was tossing and turning and the whole room was spinning! I kept running to the bathroom across the hall because I felt I was going to be sick to my stomach but nothing would happen.
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I wouldn’t say life having epilepsy is a walk in the park, because every victim is affected in a different way. There are those who have small petite mal seizures, and then there are those who have grand mal seizures that are affected emotionally and physically, like myself.
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My daughter is 24 years old and she has autism and mild mental retardation. When she was sixteen she also developed epilepsy and has grand mal seizures since then. My experience parenting a child with a developmental disability I would call a journey. A journey with many twists and unexpected turns.
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In December 1995 at 7 years old, I was diagnosed with liver failure, and within 6 days I had only 10 percent chance of surviving. The transplant was successful, and ever since then my liver has been fine.
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It is funny how one event can completely change your life expectations, idea of happiness or outlook on life. As a 35-year-old mom of two, I admit to having felt flustered and worried most of the time, trying my best to hold down a full-time job while raising two toddlers alongside my husband, who also had a full-time job. It was usually with a mixture of tiredness, happiness and a little guilt that I would run over the day’s events when I turned the light off, wondering if I was letting down my work, children or husband, despite my never-ending race to fulfill all their expectations.
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